randomling: A wombat. (Default)
[personal profile] randomling
Hey all.

My spoons have taken a serious nosedive the last week or so, not sure why except depression is continuing to eat my head.

Would someone be up for a) volunteering to join me as an admin for the comm and b) maybe making and looking after a tag-modding sign-up post so we can get the ball rolling there? (I'm thinking of maybe a weekly rota with one person per day, plus people volunteering to cover in an emergency if possible, but if someone can think of a better way of running it please go ahead.)

a) and b) don't have to be the same person, though I think it will also make sense for tag mods to be admins (it makes sense for tagging to be admin-only, I think, 'cause that will make curating easier). In fact a few people signing up to be comm admins would be fantastic. I'm up to making people admins, just monitoring the tag-modding post and keeping control of that feels like too much right now. :/

Thanks, folks.
the_rck: (Default)
[personal profile] the_rck
I’ve been thinking that it would be useful to have a central post (possibly a sticky post?) for people to leave comments with links that aren’t immediate action things or that go to somewhere that has a lot of different things going on or to somewhere that features information that will be useful long term. Someone would then compiled submitted links, sorting them by type (more on that below).

My assumption is that keeping up with submitted links wouldn’t take a lot of time at any one time, so I’m willing to undertake the task. If it gets to be too much, I’ll ask for help, but this is the sort of thing that I know I can do.

Lots of questions and more details )

I’m now also thinking that a sticky post index to some or all posts in the community might also be useful, but tags will cover that to some extent, so is that something we might need/want? If we do, would it be for all posts or just for some? I think it would be most useful for things that don’t have expiration dates. If we do want it, is anyone up to taking on the job?


Nov. 20th, 2016 11:34 pm
randomling: A wombat. (Default)
[personal profile] randomling
I'm thinking about tagging posts - specifically the action-suggestion posts that we've already started generating (yay!).

I think we need a) a tagging scheme and b) a roster of people/mods who would be willing to tag entries. For this purpose I think it might make sense to restrict tagging to mods only - that way we can curate the tags a bit more easily.


a) Tagging scheme
I'm thinking that we could have, for example, tags like:
req: personal info
req: mental
req: physical

location: wherever (obviously for in-person events these things will be probably town-specific, which means we might end up with quite a few if the place gets busy, but we have a 1000-tag limit so we don't need to worry too much about proliferation yet)

current for things that either don't have a deadline or haven't passed it yet

Plus an "action" tag just to differentiate those posts from... discussion posts like this, people's questions, general advice, etc.

Any other thoughts on what tags we might use?

b) Tagging mods

I think that if we go with my method here, we'd be looking at two tasks for tag mods

- go through the new/untagged posts and adding appropriate tags, maybe once a day
- go through the "current" tag and check for stuff that's passed its deadline, expired, the link is now broken, whatever - probably less often than daily, once a week might be fine for this?

So the question here is who'd be willing to do that? If you don't know how to do it technically I'd be happy to describe or hop on IM to explain! (I'm not generally up for Skype or other voice or video calls at the moment, sorry.)

ETA: I'm an idiot! I didn't mean that one person has to do the tag-modding every day for the rest of time! I'm looking for a group of us who can do the modding and hopefully cover for each other in times of sickness/exhaustion/overwhelm/etc so we are each only doing one every few days. (Hopefully less potential for burnout that way.)

Thanks folks!
sasha_feather: Retro-style poster of skier on pluto.   (Default)
[personal profile] sasha_feather
What can we do, as chronically ill people? We are often not people who can plan and lead marches. We generally cannot work long hours. Many of us have trouble with phone calls due to anxiety. Many of us are poor and cannot donate or purchase supplies.

Here's what we can do.
Link sharing of important information, research and fact-checking.
Emotional labor, such as telling people we care for them, leaving supportive comments, linking to cute animal pictures and music.
Listening to people's troubles. Using Skype and calling our friends. Sometimes you understand something so much better when you describe it to someone else; you can think through a problem when you talk to someone.
Sending packages or notes in the mail.
Producing fanfic, fanworks, art, etc. Journaling. Creating. Letting our voices be heard. Reminding the world that we exist.
Wearing buttons-- making ourselves and our positions visible to the world.
Starting conversations. Being allies as best we can.
Sharing what resources and skills we have. For instance cooking, proof reading, pet sitting.
Taking care of ourselves and each other, because survival is essential. Reminding others to do self-care. Affix your own oxygen mask before assisting others.
davidgillon: Text: You can take a heroic last stand against the forces of darkness. Or you can not die. It's entirely up to you" (Heroic Last Stand)
[personal profile] davidgillon

This is something I posted in response to [personal profile] randomling asking how people organise to resist when they're spoonies with available physical and mental resources compromised by disability, but in writing it I realised it has wider applicability, so I made it a post of its own in various places and it seems like there should be a copy here as well. This focuses on the disability side of things, and there's potentially so much more at risk, but disability campaigning is where my experience lies. It should hopefully be applicable to most areas of equality and human rights. Anyway:

The UK experience might offer some insights into how to resist the regressive forces that seem to be suddenly ascendant. Most of my disabled friends were fairly apolitical until near the end of the last Labour government, when we realised how bad the new Work Capability Assessment was. Then under the ConDem government, and now the Tories alone, things got rapidly worse, with a calculated plan to paint disabled people as lazy scroungers, and pretty much all of us radicalized.

The more active types formed Disabled People Against the Cuts and protested on the streets. The spoonies, my people, the ones who can't, who may struggle just to make it out of bed, went the web route. There were a couple of blogs/news sites which formed, and which became fairly influential, in documenting what was going on, analysing the reality, and reporting lived experience of harassment and the like. We started to get journalists following what we did, and recycling our news into national media. In some cases we were invited onto national media, and we even had government ministers refusing to appear opposite some of our spokespeople. There were also a small group of journalists who were themselves disabled, and working on social stuff, and who were very useful links.

A second prong was analysis of government proposals and data to show the reality. What became known as the ''Spartacus Report' showed that the government had lied in claiming that disabled people had backed their reforms in a consultation (it was actually c2000 against, 12 for). This forced the first defeat on the Condem government in the Lords since it had taken power, though they reversed it in the Commons. The Spartacus team followed it with a bunch more of influential reports (it helped to have a statistician and a mathematician in the core group). I've actually just posted some analysis of my own and one of the journalists mentioned above will have an article about it out tomorrow.

A third approach was using pro bono law firms to force Judicial Reviews on the government to rule on the legality of their policies (the sort of stuff ACLU and SPLC does in the States). This has rarely stopped them dead, but has been very useful for publicity purposes, so people see what policy actually means, and very good at forcing the government to produce Mark 2 versions of policy that are slightly less offensive than the initial versions.

Another route was activism within political parties, proposing disabled friendly policies at their annual conferences, and forging links with politicians who would give us a hearing. We also had the support of several disabled members of the House of Lords who sit as independents and are acknowledged as disability experts.

It may also be necessary to target supposed ally groups. There has been a very successful campaign to shame charities involved in the government's workfare scheme. I personally found it necessary to administer a public rebuke (it trended!) to the crowdsourced campaigning group 38 Degrees, which was deliberately ignoring disability issues, even when its own processes said it should be campaigning on them as a priority.

A necessary caveat is that most of us have burned ourselves out. Self-care is important, but burn-out is probably inevitable for a percentage of those involved, so take care of yourselves, and try to keep recruiting new blood.

Ultimately our protests haven't stopped the government, but they have ameliorated the effects, and we caused so much damage to the reputation of some of the firms involved in implementing policy at the point of delivery that one actually walked away from a contract worth hundreds of millions, because our campaigning was destroying the value of their brand.
randomling: A wombat. (Default)
[personal profile] randomling
How about something like a one-activity-per-post system?

For example:
Suggested activity: Sign this petition / donate to this cause/fundraiser / submit an article(/story/poem/piece of art/wevs) to X submission call / attend X event / whatever

Possibly followed by the submitter filling in a short form, like:
Location: (for meatspace events)
Time estimate: (5 minutes, an evening, whatever) (Possibly we could have a classification system, something like: short, under 10 mins, medium, under an hour, long, under a day, very long, something that takes sustained effort over days or weeks?)
Deadline: (eg petitions and fundraisers are likely to have a closing date)
Does this require me to: leave the house?, spend money?, expend mental spoons (eg: writing something)?, expend social spoons (eg making a phone call, show up in a chatroom)?, make a decision (eg how much to donate)?, reveal personal information (eg petitions sometimes require full name and postal/zip code)?

Mods could then show up and tag submissions depending on the contents of the form or perhaps our own research if some questions are left unanswered. Maybe that could be a once-a-day thing? Then we'd have a nice searchable archive of things-to-do.

(For actions with a deadline, we could tag them "current" and "deadline" or something, and have a mod scroll through current+deadline things every now and then to take "current" off the ones that have expired.)

Brainstorming questions:
* Does this seem like a good idea?
* How would you modify it to work better?
* What other tags might we add to make the list more accessible?
* How to organise tag moderation so that tag-modding is also reasonably accessible?

Answer any, all or none - just saying hi is fine!


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